Our story begins at our 20 week anatomy scan. Our Obstetrician-Gynecologist told us that our unborn baby, Oaklee, had a cleft lip and that he wanted to send us to a high risk Ob-gyn for their opinion.
Two weeks later we went to see the second Ob-gyn. During the ultrasound scan he never said a word to us. I remember him ending the ultrasound, looking at my husband and I and asking what we had been told was going on. We were confused as to why he was asking this, I told him we were just told she had a cleft lip and they sent us here for a second opinion and to see if she also had a cleft palate.
That’s when we first heard the words “Semi-lobar Holoprosencephaly”. The doctor very vaguely explained it to us, telling us that it was a brain abnormality and that Oaklee more than likely wouldn’t be compatible with life.
Throughout our pregnancy we were told to terminate our our baby a total of fifteen times, all by different doctors and specialists. This was never an option for us. I just had a gut feeling that Oaklee would be okay.
Oaklee is now 5 months old and thriving. My husband Chad and I find ourselves thinking almost everyday how different life would be if we had actually listened to them and terminated our pregnancy. Oaklee is a ray of sunshine to the lives of everyone she touches, we are truly blessed.
